Keepin' it on the down low

Recently someone emailed me with a question to clarify a term that I use quite frequently. I apologize to anyone else who has had this confusion, and realize that just because I say something over and over, doesn't mean that it will make more sense each time - anyway, here is the question, and the reply.

"Hi Molly,

I was reading your web site about Pelvic Floor Dysfunction and had a question.

I have had serious pelvic floor problems. I have had two major repairs and an ileostomy. I have had the ileostomy reversed and PFtherapy. I did pretty well for a while, then started having more difficult evacuation. I have changed therapist, which is not easy. I live in Massachusetts, and PF therapists are not easy to find, especially someone good.

I am wondering what "down training" is? I want to ask my therapist, but would like to know first.

Thank you,"

Down training: Using biofeedback as a tool to relax, rather than strengthen, the pelvic floor muscles

There are several ways to go about this, all of them a little frustrating, which is why most of my patients use a home-unit, so at least they get to be in familiar surroundings while trying to relax.

EMG (biofeedback) measures the electrical out put of the muscles. That's it. If the muscles are "high tone" or contracting, there is more output, if "low tone" (weak), or if contractions are very weak, there is less output. When strengthening the pelvic floor, we set a goal to tighten the muscles to a certain level, when the level is reached, there is a noise or some other indicator that you have reached your goal.

When down-training, we set the goal at, or slightly below the resting tone (threshold). Here is where I differ from a lot of therapists. You can set the tone to go off when the tone drops below threshold. When this happens, you know you have achieved your goal of relaxation. I tend to work the other way, and have you work on turning the sound off (when you relax the muscles, the annoying noise goes away) - it just makes more sense to my way of thinking that if you are trying to relax, you really don't want the machine to beep at you every time you finally get there.

soft lights, relaxing music, meditation, maybe a hot pack, at first - whatever it takes to get your whole body to relax. As you get more practiced, then the goal is set to a more challenging level, and perhaps you allow a more functional surrounding, getting your pelvic muscles to relax on demand.

You may be asked to occasionally contract the muscles during a session - this OK, it gives your eyes, ears, and body a reference point between contracted and relaxed. You should not be asked to continue contracting the muscles if you are completely unable to get them to relax afterward.

There are whole protocols on contracting the muscles to fatigue in order to achieve relaxation, and some evidence that it works. For those that it doesn't work on, the effects can be devastating. This method does not fit my treatment philosophy at all, and I refuse to do it, even when specifically ordered by the doctor. To clarify a little more here: If you have tight muscles in your neck, and were asked to do repeated exercises until the muscle could not lift even the weight of your head, you would consider that pretty extreme - especially for an area that has to be active during normal daily function. Your pelvic floor is active whenever you are in an upright position, fatiguing these muscle to exhaustion will give temporarily relief, and some people respond well enough to have lasting effects. Others can't get all the way to fatigue, or the muscles bounce back with uncontrollable spasm, reinforcing the tight, unrelenting contraction and shortening of tissues that causes so many of the imbalances in pelvic floor dysfunction.

Anyway - I hope this clarifies things for some people, and please - ask questions! If I don't know the answer, I will try to research it, or throw out an opinion, or maybe add a different perspective to the subject.

More New Friends ! ! !

I found a relatively new blog that really warrants mention: PELVIC PAIN MATTERS. The blogger, Bonnie Bauman, is an author, a chronic pelvic pain patient, and a fabulous, dynamic person. Her blog is chock full of information, and resources. She is very honest and open about her own journey, addressing her condition with humor and hope, and a single minded focus on finding effective and appropriate treatments.

She has a fabulous physical therapist and a fantastic doctor, and she uses them as constant resources. She also has a section on her blog dedicated to finding and posting information on good providers. So - if you have a doctor or PT or anyone else that has helped you immensely, let her know, she is compiling a list.

Light Touch

There are two kinds of light - the glow that illumines, and the glare that obscures.

~James Thurber

I have spent the past several months researching everything I can find on “Low Level Laser Therapy” or “Cold Laser.”

The amount of information is vast, the quality is confusing, conflicting and difficult to sort through. I managed to talk a few reps into letting me play with demo models, and I sorted through enough information to justify purchasing a machine. So now my task is to try to make sense of all of the information available, and squeeze it into a nutshell that is easier to handle. I am NOT an expert, and my experience is limited. (That was my disclaimer). I hope this helps, but if you decide to seek light therapy for any condition, please discuss it thoroughly with your health professionals.

First – it is perfectly safe. The machines on the market available to clinicians will not burn you. We are all familiar with the concept of surgical lasers, and have seen Hollywood lasers burn through metal, glass, people, even mountains. The class “3” or “3b” lasers, which are the light frequencies used in rehab, will not burn holes through your body or damage tissue.

The treatment has been approved by the FDA for temporary relief of minor muscle aches, joint pain and stiffness, relaxation of muscle spasm and increasing local blood flow.

At this point, I know of no insurance companies that will pay for cold laser treatment. Part of this is secondary to the type and quality of research available. There are foreign studies that are better, mostly Russian, but they are not the studies that insurance companies look at. I reviewed the abstracts on many of the studies cited by some of the insurance companies, and I understand the justification for denial. Even those reviews admitted that “further study” is warranted. They are not ruling out the possibility of payment, they just want tightly controlled, well-designed studies. And here-in lies the problem. Most of the studies available in the US are funded, in fact, PERFORMED, by clinicians with a monetary interest in the companies that make or sell machines, creating an inherent bias. Many of the abstracts I looked at were small samples, or had multiple, uncontrolled variables, and were, in short, not very well designed. There is not a lot of incentive for really good studies. Practitioners are using them, patients are paying out of pocket (and getting results) so there is not a lot of financial incentive to have better studies: if people will pay out of pocket, and the FDA has approved it, do we need 3^rd party payor blessing?

Does it work? We all know the benefits of sunlight. We know that light can be extremely powerful. We know that even tiny laser pointers can span great distances through air, glass, and some plastics. If you hold a flashlight to your hand in a dark room, you see the dense silhouette of bone surrounded by eerie red as the light penetrates your blood vessels. Better yet, put the flashlight in your mouth and puff up your cheeks – sorry, inner child moment. Light can penetrate, and these lasers are fairly powerful.

But how does it work? The theory is that laser therapy increases your metabolic process by exciting the mitochondria. Uh-oh, 8^th grade biology flashback! Mitochondria is the powerhouse of your cells, they produce energy for your cells, and keep everything running. They love light. In fact, it is partially the mitochondrial response that makes sunlight so good for you. It also increases protein synthesis, promotes efficiency at the cell membrane to normalize pressure, and improve exchange of nutrients and wastes. All of this activity on the cellular level is supposed to decrease swelling, inflammation and pain, promote healing and generally make things work better.

But – does it really work? Well, I have only been using the machine for a couple of months, and, again, I am not an expert. The results have been strong enough for me to purchase one. I am still playing with protocols and parameters. Some of my patients have had truly phenomenal results. I am hoping that those that did not have such positive results will benefit from my increased proficiency. When a treatment effects the cellular metabolism, there is risk of temporarily increasing symptoms, especially in the chronic pain population. I tend to error on the very conservative side of caution. My patients that did not get better, also experienced no increase in symptoms. As I get more comfortable with the therapy, I will probably treat (slightly) more aggressively.