New Friends, New Resources
I have added two new links to the list on this site.
One, a new Vulvodynia Blog, is a great informative site from Poland, written to bring awareness of this devastating condition to the people and powers of Eastern Europe. Conversations with Mikolaj (the creator/moderator) have shown me that awareness over there is about where it was in this country 15 or 20 years ago. It is not diagnosed, rarely (and almost always inappropriately) treated, and the women are given no resources or validation of the physical nature of their illness. The link I put up is for the automatic english translation. It is a little awkward, and some words don't translate at all, but very informative. Please check it out, and if you are aware of good resources, particularly materials that offer instruction for self-treatment, please let them know.
Two - The Vagina Dialogues. OK - you gotta love the name, and Abigail Steidley has a lot of great information. I actually got the link for her site from the Polish blog, (thanks Mikolaj) I often discuss how chronic pain issues effect mental and emotional health, and I am a huge advocate of counseling. Chronic pain does not come with an instruction manual, and while you are busy navigating the turbulent waters of life, illness, and an impersonal medical system, some sort of mental support and help in dealing with all of it is really important. Abigail has taken her training as a life coach and directed it to a population that needs coaches. And cheerleaders! She works with people suffering from IC, vulvodynia, dyspareunia and other painful pelvis syndromes.
Please visit these sites, and let me know if they help!
One, a new Vulvodynia Blog, is a great informative site from Poland, written to bring awareness of this devastating condition to the people and powers of Eastern Europe. Conversations with Mikolaj (the creator/moderator) have shown me that awareness over there is about where it was in this country 15 or 20 years ago. It is not diagnosed, rarely (and almost always inappropriately) treated, and the women are given no resources or validation of the physical nature of their illness. The link I put up is for the automatic english translation. It is a little awkward, and some words don't translate at all, but very informative. Please check it out, and if you are aware of good resources, particularly materials that offer instruction for self-treatment, please let them know.
Two - The Vagina Dialogues. OK - you gotta love the name, and Abigail Steidley has a lot of great information. I actually got the link for her site from the Polish blog, (thanks Mikolaj) I often discuss how chronic pain issues effect mental and emotional health, and I am a huge advocate of counseling. Chronic pain does not come with an instruction manual, and while you are busy navigating the turbulent waters of life, illness, and an impersonal medical system, some sort of mental support and help in dealing with all of it is really important. Abigail has taken her training as a life coach and directed it to a population that needs coaches. And cheerleaders! She works with people suffering from IC, vulvodynia, dyspareunia and other painful pelvis syndromes.
Please visit these sites, and let me know if they help!
posted by Molly at
4:34 PM
1 Comments:
Hi Molly,
Thanks for posting these resources! I've had vulvodynia for 12 years and am only now finding some relief after finally getting a correct diagnosis. I recently discovered Abigail's site and I love it too!
I'm also starting up a new vulvodynia research website called CureTogether.com to bring patients and researchers together to share their knowledge and work towards a cure. I'd love to hear your feedback on it!
Thank you for blogging about vulvodynia - the more we can all spread the word, the faster we can end the suffering.
Best, Alexandra
alexandra at curetogether dot com
By
Sustainable Living Dojo, At
2:08 AM
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